Winter 2001 ~ Newsletter

Sports & Exercise

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Articles:

Do Patients With CF Need To Exercise?

New Website Focusing On Education and Research

Patient and Parent Perspectives

Parent Discussion and Education Group Update

Dear Kim ...

Highlights From The 2000 NACFA Conference

UAB CF Center Plans Transition For Adults

Q & A Time with Dr. Young

Great Strides Update

Dropping By To Say Hello ...

From The Editor

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Angelina Whittle Sears passed a huge milestone by getting married on November 4, 2000.  She now lives in Nashville, TN.  Way to go Angelina!

Roger Johnson celebrated his lung transplant 2 year anniversary on October 4th!

Summer Shelton had a little girl, Payton, on December 22, 2000!

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Scandipharm Launches "Care First" as New Program for CF Patients

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

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