Spring 2000 ~ Newsletter

Cystic Fibrosis and Reproduction

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Articles:

Alternative Ways For Reproduction

Q and A On Reproductive Health and Cystic Fibrosis

Work and Keep Your SSI Benefits

Patient and Parent Perspectives

Parent Discussion and Education Group Update

Alabama Cystic Fibrosis Foundation Update

From The Editor

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Jimmy Lanier celebrates his 10th anniversary with new lungs.

Kelly Lanier wrote in letting us know that she will be celebrating her 1st transplant anniversary will be in July!

 

Steven Long received his new lungs February 18, 2000!

 

Tony Siciliano received his new lungs March 9th, 2000!

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Scandipharm Launches "Care First" as New Program for CF Patients

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

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