Spring 1999 ~ Newsletter

Insurance Issues and Cystic Fibrosis

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Articles:

Disability, SSI, and CF - A Primer On The Basics

Help During Difficult Times

Questions Commonly Asked About Insurance

CRS Serves The Children Of Alabama

Patient and Parent Perspectives

New Huntsville Parent Support Group

Small Talk With Brett

From The Editor

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Roudy Jones graduated from UAB with a degree in Electrical Engineering on December 12, 1998!

 

Daniel Maloney received a successful transplant on November 7, 1998!

 

Baron Moseley is getting married to April Elkins on May 22, 1999!

 

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Scandipharm Launches "Care First" as New Program for CF Patients

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

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