Q. Whom
do I call if I get sick between clinic visits?
A. During
business hours, you should contact Joy St. John at (205) 975-0763 and speak
with her or leave a voice message. If you follow the instructions and
mark the message "Urgent," she will be paged to get your message.
After hours, call the University Hospital Paging Operator at (205) 934-3411
and explain who you are and ask them to page the "Pulmonary Doctor On
Call." That person will call you back promptly.
Q. What
will I do if I need help from a social work, dietitian, or a physical or
respiratory therapist?
A. Individuals
from each of those fields are part of the adult care team, and you will get to
know them during your clinic visits and hospital stays. Joy or Dr. Young
can enlist their help for you at any time in between these visits.
Q. I've
liked things just fine at Children's! Why do we need an Adult Program
anyways?
A. As
patients with CF are living longer and longer and now routinely live into
their 30's and beyond. At this age, they develop many of the same health
concerns that other adults face. These concerns are things that
internists or "doctors for adults," are specially trained and
experienced in dealing with. Similarly, hospitals that care for adults
are uniquely equipped to handle the health issues confronting these patients
and have specially designed programs (for example, lung transplantation) that
will be helpful to adult CF patients. For these reasons, the Cystic
Fibrosis Foundation, as well as adult and pediatric pulmonologists around the
country, have been strongly committed to the development of adult programs as
the very best way to provide the best possible care to adult patients with CF.