Many parents have expressed an
interest in helping those families that are newly diagnosed or those in the
hospital several times during the year. Creating a care basket for the
families and wanting to see who is hospitalized are some of the many
suggestions that we have received from parents.
The parents also want to include
the CF adults that are hospitalized at UAB, because they want to keep in touch
and stay connected.
This network will be open to all
families, but certain information, such as current hospitalizations, must
remain confidential. Please write to us, or e-mail us through the parent
website page at the UAB site for more information on how to be involved.
We would love to hear questions
and comments on building a CF community that cares about each other!