This is a time for parents to get together
and learn more about how to live, learn, and teach about Cystic Fibrosis.
Learn how to be a better guide and parent to your child. In the past, we
have covered such subjects as: social security, alternative methods to
respiratory therapy, and talking to teachers about CF.
On January 20th, we will have a speaker from
Blue Cross / Blue Shield talk with us about insurance. This will not be
on how to get insurance coverage, but on how to be a good steward of your
policy. We want to learn how to tell if we are getting double charged,
or how to advocate when buying a piece of equipment would be cheaper than
renting it like we are sometimes forced to do.
Bottom line is it is wise to learn how
to be a good steward of your insurance policy because most insurance companies
have things such as lifetime maximums. Many CF patients come close to
this cap (usually $1 million) because of the rise in the cost of medicines and
equipment. Come and learn more about this interesting topic that
pertains to everyone.
We meet at Briarwood Presbyterian Church from
1 - 3 PM. We do not recommend bringing your children due to
cross-infection issues. If you need support in any way to be able to
attend, please contact Staci Thrasher at (205) 939-5499.
You can also find more information about our
Parent Discussion and Education Group Meetings by visiting the Birmingham
Cystic Fibrosis Center website.