Fall 2002 ~ Newsletter

Hope: A National Perspective

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Articles:

Hope Springs Eternal

A Child's Hope May Be The Parents

The Extraordinary Journey

The Gift of Cystic Fibrosis

CF - Hope for Alabama

Patient and Parents Perspective

Parent Discussion and Education Group Update

SourceCF

Dear Gary ...

CF Research in Alabama

Education Day Update

Alabama CF Foundation Update

From The Editor

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Mary Lindsey Hannahan (age 7) was the top fundraiser in Mobile for Great Strides!  Mary raised almost $115,000 for CF Research.

Abbey Parsons - her softball team played in the Dixie Ponytail's World Series.  Congratulations!

Elizabeth Weaver got married on June 22^nd! 

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Scandipharm Launches "Care First" as New Program for CF Patients

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

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