Fall 2000 ~ Newsletter

Cystic Fibrosis and Education

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Articles:

Help For A College Education Is Here For You

Have You Considered Home Education?

Back To School: Special Education and Cystic Fibrosis

Dear Kim ...

Research Update: Megace Study

Patient and Parent Perspectives

Parent Discussion and Education Group Update

Alabama Cystic Fibrosis Foundation Update

Dropping By To Say Hello!

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Amy Hurd, 19, received a double lung transplant on May 4, 2000.

Jill Roberts have birth to a beautiful baby boy, Ethan Chandler Ball on August 1^st.

Tony and Tammy Cluck adopted Tyler, born on June 9^th, 2000.

Dr. Clancy and his wife celebrated the birth of their baby boy, Aidan John, on September 10^th, 2000.

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Scandipharm Launches "Care First" as New Program for CF Patients

 

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

 

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