Fall 1998 ~ Newsletter

Cystic Fibrosis and Lung Transplants

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Articles:

Life Expectancy From A Lung Transplant

Exercise Is Recommended

Questions Commonly Asked About Lung Transplants

Important Medicaid Issues

Patient and Parent Perspectives

Welcome To The Parent Support Groups

More Comments From The 1997 CF Conference

Small Talk With Brett

From The Editor

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Milestones

It’s time to recognize great moments and / or achievements in the CF Community.  Please send your moment to the editor so we can all share in celebrating your successes!

Diana Butler received her lung transplant on June 4th!

April Roberts will be married on October 17th!

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Scandipharm Launches "Care First" as New Program for CF Patients

Axcan Scandipharm, a Birmingham, Alabama based pharmaceutical company specializing in Cystic Fibrosis offers a program to help newly diagnosed CF patients.

The “Care First for CF” was launched in January 1999 to help relieve the cost of pancreatic enzymes and vitamin therapy for patients up to two years of age.  Simply stated, if a newly diagnosed patient or previously diagnosed patient uses ULTRASE Microspheres (4,500 units lipase), Axcan Scandipharm will provide these enzymes to the patient free of charge until the patient’s second birthday.  Also, Axcan Scandipharm will send ADEKs pediatric drops vitamins on a monthly basis, as well as a copy of Dr. David Orenstein’s book: “Cystic Fibrosis: A Guide For Patient and Family.”  Families who are interested should contact their physician, nurse, or social worker.

Click above to visit the Axcan Scandipharm website!

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