CF Links (on the WWW)
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CYSTIC-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis.International Cystic Fibrosis Support Group serves the purpose of disseminating information concerning Cystic Fibrosis, to give support to those involved with the disease and to provide a forum for the discussion of topics relative to Cystic Fibrosis. This is also an e-mail support group.A message board support group.A message board support group, specifically for parents of CF patients.A message board support group, specifically for spouses of CF patients.A support network where you are connected to resources, advice, information and compassionate guidance to help you and your family.The majority of pediatric CF patients are treated at Children's Health Systems, also known as Children's Hospital.In order to create a better understanding of chronic, debilitating illness, IDA provides informative pamphlets, a 40 page booklet, helpful links, a message board and much more!A non-profit Christian organization for people who live with chronic illness or pain, and their families; offers emotional, spiritual, relational, and practical support through a variety of programs and resources.This really is a personal website, but she has invested so much time and provides such an amazing amount of information, I felt she deserved to be in this section. This is an excellent CF Resource, and has about 1,944 CF links accessible from this site as of September 10, 2002.
A great compilation of CF information, including message boards, chat groups, and other organizations.
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
A very thorough information site about Cystic Fibrosis, including up to date information on research news.
Discount books on Cystic Fibrosis for patients, family, friends, etc.
A good forum dedicated to discovering the cure for cystic fibrosis.
International Association of Cystic Fibrosis Adults - providing hope for those to come.