Fall 2002 ~ Newsletter
Hope: A National Perspective
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"A Child's Hope May Be The Parents..." - from the author of the book, "Alex"
by Frank Deford
I know how shattering it can be to hear news like your child has just been diagnosed with Cystic Fibrosis. Once, I had the same experience. So, first - take a few deep breaths and listen to your doctor about the issue at hand. Your child is going to need a lot of your help, so first, concentrate on that - 'what can I do?'
Only then should you worry about the future. Once upon a time, Cystic Fibrosis was a virtual death sentence. It isn't that at all anymore. The chances are better if your child gets the correct care that the child will be alive when a cure or a control is found. Remember, the life expectancy is in the 30's now and there's a lot of time
So just as it's important to provide the proper attention, so is it vital to provide the proper attitude. A child with cystic fibrosis will gain strength and hope from the way it sees its parents respond to the illness. Think about that. You can do more than any doctor or nurse in giving your child the will to fight the disease and the belief that hope reigns.
Think those things! Then go back to worrying about how you are going to save up for your child's college tuition.